My life with dialysis

I need support

Perhaps it was clear to you from the start that you needed more support in carrying out your treatment. Perhaps you decided on a home therapy option and have noticed that dealing with dialysis by yourself at home is overwhelming. Listen carefully to your body, there is no problem with asking for help.

For example, support may be available in the form of assisted dialysis for home dialysis. A family member or close friend may assist you with the treatment. If a family member or friend takes on the role of an assistant, that person will also receive extensive training from the supervising dialysis center. In some countries, a nursing service may be able to assist you with the treatment. However, it is important that you also understand your treatment and the related responsibilities.

We have compiled what this entails for you and your assistant.

Simple ordering process of materials

As a home dialysis patient, the materials required for the treatment will be delivered to your home. For example, these include bandages or solution bags for peritoneal dialysis and dialyzers and disposables for home hemodialysis. Your dialysis center will help you compile a list of all the materials you will need and show you how to fill out the order form.
Having an adequate inventory is essential for your treatment to be carried out. You should therefore adhere to the following guidelines:

  • Please check the stocks of each product regularly. Also, think of accessories, such as bandages and disinfectants.
  • Order the required quantities for a certain period of time. You should also ensure that someone is at home when the delivery is made and can receive the goods.

Even as a home patient, you are not on your own! Have self-confidence and view dealing with therapy independently as an opportunity to take control of your life with dialysis.

  • Symptoms of kidney disease
  • Taking steps to prevent complications, such as practicing good hygiene at your blood access site by disinfecting your haemodialysis machine system as advised, or at the catheter exit site and when performing a PD exchange.
  • Taking your medication as prescribed. Report any side effects to your physician.
  • Being diligent about your dialysis. Skipping dialysis or not doing it according to your prescription may lead to complications.
  • Reporting complications or the development of unusual signs or symptoms to your physician or nurse. Keep in touch with your physician and nurse! Show up at appointments and call them in case of questions or complication.
  • Peritoneal dialysis (PD)
  • Hemodialysis (HD)

Frequently asked questions

General

  • What should I do if my legs are swollen?
  • Can I still go on vacations?
  • Can I wear tight clothes?
  • Can I do sports?

Peritoneal dialysis

  • Can I have a normal sex life?
  • Can I keep my pets?

Hemodialysis

  • Can the needle fall out during treatment?

Transplantation

  • How can I become an organ recipient?
  • How long do I have to take immunosuppressive medication after a transplantation?

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